Things to consider following a diagnosis

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Sign on with a trusted Health and Wellness Coach

When a child first receives a diagnosis, the news impacts the entire family. Everyone processes the experience differently, but typical reactions can include fear, shock, disbelief, guilt, confusion, anger and sadness.

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Here at Build Life Habits, my mission is to care for the logistical, behavioral, emotional, cognitive and spiritual needs of clients. Below is a list of some helpful tips to consider as you being this journey with your child.

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Be careful about the source of your medical information

There is a lot of scary information on the internet – some of it is accurate, some not. Some of this information can cause unnecessary stress and fear because it does not address your unique case.

It's highly recommend that families ask their medical team

for the best sources of trusted information.

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Use your social workers

Certain areas and certain diagnosis will receive a dedicated social worker. When a child is diagnosed, the rest of life’s demands don’t disappear. Many families are already stressed by everything else that they have going on in their lives. Social workers can provide your family with social support and help you sort through your logistical and financial needs. 

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Accept that everyone copes differently

It may be difficult when you’re in the thick of things, but accepting that everyone copes differently can be helpful to your family. Some people process quietly. Others want to talk about every emotion they’re having. Some need to write it all down. Make an effort to be understanding when your child or other family members cope differently than you do. 

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You own your child’s information

Share information about your child however you want, whenever you’re ready. You will likely experience a roller coaster of emotions throughout your child’s journey. Well-intentioned friends and family are going to ask you a lot of questions and you may not be ready to answer them. Sometimes you have to deal with the emotions before you’re ready to answer questions. It is perfectly okay to say, “I’m not ready to answer that, but I appreciate your concern.” Or, if you’re comfortable, direct them to a place where you are sharing information, such as a caringbridge.org site or a Facebook page

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Ask for and accept help

You will need the support from your friends and family more than you ever have before. People will overwhelmingly want to help, but may not know how. Be sure to ask them for exactly what you need.

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Find support for siblings

Any diagnosis is draining on the entire family, including your other children. They will need support as well. Your social worker can help you figure out how to support your other children. Friends and family members can be especially helpful in supporting siblings. 

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Take care of yourself

Seeing a loved one through treatments is a marathon, not a sprint. You will take care of your child better if you are taking care of yourself. This is a difficult thing to do when your child is going through something so difficult. When you’re comfortable and ready, you will benefit tremendously from eating right, exercising, talking to someone you trust, and if it fits for you, praying.